Right now I'm having to give up my life
to take care of my dying grandmother and grandfather who are on
hospice. For some reason, my grandmother decided to die before
grandpa, so she wouldn't have that responsibility but maybe that's a
good thing since grandpa makes more money on retirement than she
does.
For two years they've been in an
independent living facility but now they must move because they need
additional care that can't be provided where they're at. Where to? I
have no idea. I signed up for CalRegistry with a list of boarding
houses and dubious results. Most are for-profit and range $4,000+ for
two people (plus extra costs of deposits, etc.).
As of now my grandmother receives
24-hour care that will cost $15,000+ a month. We signed up for this
on Saturday, October 17th, 2015. There's also a $1,584 deposit and a
clause that states if you hire one of the workers outside the
company, you're liable for $5,000. I put this on my credit card and
had to rent a car for about a week, since taking public
transportation would be a 6 hour commute from San Francisco to
Antioch.
There's not much I can do in this
situation that keeps getting worse everyday. I've never seen my
grandmother this bad. For most of my life, she's taken care of me.
She got guardianship of me when I was 11-years-old after a several
year battle with courts who wouldn't let her take care of me after my
drunk mother abused me. My father was never in the picture.
As a teenager, I've seen her health
failing and went through her ordeal of a broken leg, and a broken
hip, which woke me up to the realization that she was an old woman
and that I had to take on more responsibility. Later on, I had to
manage the household bills, finances and more responsibilities.
I was made Power of Attorney when it
was obvious my uncle didn't want any responsibility for his mother.
My aunt got Alzheimers and couldn't be in this role and was later
removed as Trustee for the living trust. Another distant relative had
helped us but was removed when they started arguing about money and
how my grandmother was spending it. Before I knew it, I was made
Trustee. I was the only one helping them at this point.
I never had any long term goals in life
because I always had to prepare for the moment when I would have to
take over when grandma and grandpa got ill. I never married, never
had children and only briefly got a place of my own before I had to
give it up again. I was never truly independent from my grandma.
The family was only sparsely involved
and they have problems of their own. I can't rely on them, as it has
been proven time and time again that they're not reliable.
I had a nervous breakdown and tried to
commit an act that would be considered suicide. Because of the
actions of others, I had to suffer an ordeal that took away my
housing and ultimately my freedom. My father helped me through this
briefly, after having surgery for a heart attack he suffered while
under stress from his job and his girlfriend and her problems. He
wasn't prepared to help me and didn't know how to handle the
situation, thus leaving me in the hospital until I threatened to call
a lawyer to get out. I stayed with him and his girlfriend briefly,
along with the girlfriend's granddaughter, but it was obvious I
wasn't wanted there. As a result, my father and I don't speak to each
other.
I stayed with another family member for
several months while I tried to recover and eventually got a job that
I would have to quit because of their bad temporary management. What
I did not know was that this family member, (husband of aunt with
Alzheimers) was also suffering from dementia. Nobody had bothered to
tell me this. One day he said to me, "I'd like my room back"
and then I had to scramble to find a place to stay so I wouldn't be
on the street. I ended up staying with my grandma and grandpa at
their place until I luckily found a place to live in an SRO (Single
Resident Occupancy) hotel in San Francisco.
I have savings from when grandma and
grandpa told me to save money, "for when you're on your own".
Well, this was it, I was finally having to survive on my own, without
help from anyone.
I kept my job for a few more weeks but
then had to quit due to the stress of "psychological bullying"
and sabotage. I didn't know how hard it would be to find another job.
I hunted Craig's List for a month or more and interviewed for jobs as
a night-shift worker at a hostel and hotel since I had no Master's
Degree and no "work experience". I did one stint for one
day delivering some drinks around a neighborhood but this didn't work
out. It was only by luck that I found another job.
Currently, I have had to take leave
from my job and I don't know when this will be sorted out.
It's up to me to do everything. No one
has been helping me. My family, for the most part don't want to be
involved. My brother has a problem with his father that he's dealing
with and his own drama. My aunt is oblivious and just managed to set
up the accounts online.
When I told my aunt about my situation,
she immediately cried out, "You can't stay here! I can't do
that!". I never asked to stay at her place, she just assumed
that's what I wanted. I told her I was giving up my life to help
grandma and that I couldn't live in San Francisco anymore but would
have to move in with grandma and grandpa to take care of them. I
asked only if she could help with arranging the Trust.
I know now to never rely on anyone.
My other uncle is... unreliable. He is
still in care of the house his mother died in, from 2009. He never
sold it but kept everything the way it was and nothing has been
moved. Getting him involved would be a mistake. No one else seems to
understand this. He and my aunt don't speak to each other.
I'm now in charge of where grandma and
grandpa have to move to, if we can afford it. I have kept track of
the finances and must pay the bills now. I estimate we have barely
enough to manage for six months. I don't know anything about loans
and I don't want my credit to suffer but I have no choice. Oddly
enough, the woman at Bank of America, who is taking advantage of my
grandma, signed her up for a credit card for $5,000. We had to pay a
$50 fee on the card. She claims she doesn't have my Power of Attorney
on file at the bank, so I can't remove this credit card that's in my
grandma's name.
Everyone has lost the Power of Attorney
papers that we gave to them. Even the hospital doesn't have it. I
have to update everything on my own.
I'm trying to work with hospice and
several different workers, along with a social worker who is too busy
to deal with us much. The hospice people tell me, "Your grandma
needs 24-hour care, they should just have two people for her rather
than 5 different people coming over." I call the 24-hour care
people and they send a bunch of women who can't lift grandma because
she can't move at all. As a result, her rib is broken by them. We got
the x-ray this weekend, a week after it happened. I'm not in charge
of staffing these people who often don't show up when they're
scheduled. I may have to pay them over-time as they call workers to
fill in.
I'm in charge of everything, including
the pills. Grandma isn't aware of things much and the care people
can't administer the drugs since they're not nurses. Hospice manages
the prescriptions. I have to write all the pills down, their dosage
and arrange them. I've had to help grandma change her diapers and
clean her up since there's only one worker to lift her and some women
can't lift her at all. Since grandma's rib got broken, she doesn't
trust women to lift her (we think it was one of the women, we don't
know who, that had broken her rib). Sometimes she won't allow a man
to lift her either. Sometimes she doesn't want to be changed at all.
It took over an hour for me and another woman worker to change her in
bed. Grandma refused to have a hospital bed. Grandma refused to be
changed.
Grandma made me swear not to let this
happen to her but it's already happening and there's nothing I can do
about it. We think we can have control of our lives, but we are
wrong. We are nothing but slaves. Slaves to society and the stupid
law that we cannot take our own lives when we are past the point of
living. If we lived in Oregon, we could arrange it with doctors that
when grandma decides she is too miserable to live, when she doesn't
eat anymore (as she had done), that it can be arranged for her to die
on a specified time with doctors and witnesses present. It would be
easier on the family and not a terrible shock, to have all this
arranged beforehand.
But no, we cannot control our own
lives. We must suffer until the bitter end.
"I waited too long..." My
grandma said to me. "Just like my sister, she waited too
long..."
Grandpa doesn't want to live without
her. He won't know what to do.
I don't know what to do either. No one
prepared me for this. For years grandma told me what to do in case
something happens but at that time I thought I could call on family
for help. Now I know better. Now I can only rely on myself. Anything
I do, any choice I do, could and will be the wrong one. I will be
blamed no matter what.
They told me, "You don't have to
sacrifice yourself, they have help." They told me, "Your
grandma needs more care than we can provide, you have to arrange
something." I thought I could take care of her, I said, "I'll
move in with her. I'll give up my life to take care of them" and
no one said otherwise. "Oh you're a good granddaughter!"
they said after that. But when I arrived on Wednesday, I found out I
couldn't even lift her or manage everything that I had to do. "Well,
you can't do it yourself" they said after they expected me to do
everything. Everyone looks to me to solve the problem they don't want
to deal with. No one ever thought of me needing help. Whenever I
asked for help they quickly left town or made arrangements. "I'm
too busy! I won't be here!". They said, "Sorry!".
Yeah, sorry. Sorry. Sorry. Sorry. Sorry. Sorry.
What about me? What's going to happen
to me? When the money runs out after I paid for grandma and grandpa's
care? When I'm left with nothing? What about me? I have no other
family except grandma and grandpa. I'm all alone. I don't have a
husband or a wife or children to help me. I don't live in an
apartment but in a slum-house in the poorest neighborhood of San
Francisco. I don't have a car. I only have what grandma and grandpa
gave to me. What am I going to do?
I have to make the ultimate sacrifice.
Grandma sacrificed plenty for me, but at that time her children were
grown, she had a husband and his income to support her. At the time
she had her own house with him.
I have nothing.
I'm sacrificing my life for my dying
grandparents. No one is helping me.
I'm not sure I'll have a life after
this. Right now I'm reading about all the homeless people of San
Francisco, "Life on the Streets" by SF Weekly Staff, and
how "they got that way". Many had a rough start and had to
rely on themselves to survive. I'm not much different from them. I
will also be homeless soon.
If I choose to live that way.
If I choose to live at all...
